|
Post by Ms. Kathy on Apr 23, 2004 5:25:05 GMT -6
[glow=red,2,300]American Council of the Blind [/glow]National. 70 affiliates. Founded 1961.
Aims to improve the well-being of all blind and visually impaired people and their families through education, support, and advocacy. National conference, information and referrals, phone support, state and special interest affiliates (e.g. guide dog users, blind lawyers, teachers and students, etc), monthly magazine (available in braille, half speed cassette, large print, diskette, and online or via e-mail). Scholarships. Online job bank. Chapter development guidelines.
WRITE:
American Council of the Blind
1155 15th St. NW, #1004
Washington, DC 20005
CALL: 1-800-424-8666
202-467-5081
FAX: 202-467-5085
E-MAIL: info@acb.org
WEBSITE: www.acb.org
VERIFIED: 4/21/3003
|
|
|
Post by Ms. Kathy on Apr 23, 2004 5:27:55 GMT -6
Autism Network for Hearing and Visually Impaired Persons
International network. Founded 1991.
Provides communication, education, research and advocacy for persons with autism combined with a hearing or visual disability, their families, and professionals. Sharing of educational materials, phone help, support groups, referrals and conferences.
WRITE:
Autism Network for Hearing and Visually Impaired Persons
7510 Ocean Front Ave.
Virginia Beach, VA 23451
CALL: 757-428-9036
FAX: 757-428-0019
VERIFIED: 11/4/2003
Blinded Veterans Association
National. 52 regional groups. Founded 1945.
Information, support and outreach to blinded veterans. Help in job searches, information on benefits and rehabilitation programs. Bimonthly newsletter. Chapter development guidelines. Regional meetings.
WRITE:
BVA
477 H St. NW
Washington, DC 20001
CALL: 202-371-8880
1-800-669-7079
FAX: 202-371-8258
E-MAIL: bva@bva.org
WEBSITE: www.bva.org
VERIFIED: 7/1/2003
Council of Citizens with Low Vision International
International. (A special interest affiliate of the American Council of the Blind) Founded 1978.
Encourages low vision people to make full use of vision through use of equipment, technology and services. Education and advocacy. Newsletter, information and referrals, group development guidelines, scholarships, and conferences. Dues $10/yr.
WRITE:
CCLVI
1859 N. Washington Ave., #2000
Clearwater, FL 33755-1862
CALL: 1-727-443-0350
1-800-733-2258
WEBSITE: www.cclvi.org
VERIFIED: 6/25/2003
The Foundation Fighting Blindness
National. 45 groups. Founded 1971.
Offers information and referral services for affected individuals and their families as well as doctors and eye care professionals. Provides comprehensive information kits on retinitis pigmentosa, macular degeneration, Usher syndrome and Stargardt disease. Newsletter. Supports research into the causes, treatment and prevention of retinal degenerative diseases. National conferences.
WRITE:
Fdn. Fighting Blindness
Executive Plaza 1, Suite 800
11350 McCormick Rd.
Hunt Valley, MD 21031-1014
CALL: 1-888-665-9010
1-800-683-5555
410-785-1414
TDD: 1-800-683-5551
410-785-9687
FAX: 410-771-9470
E-MAIL: info@blindness.org
WEBSITE: www.blindness.org
VERIFIED: 3/17/2003
Lighthouse International
Resource.
Mission is to overcome vision impairment for people of all ages through rehabilitation services, education, research and advocacy. Free literature on eye diseases (macular degeneration, glaucoma, cataracts, diabetes, and more) and various resource lists (reading options, adaptive computer technology, financial aid, etc.) Referrals to support groups, low vision services, rehabilitation agencies, state agencies and advocacy groups. Free catalog of low vision aids.
WRITE:
Lighthouse Int'l
111 E. 59th St.
New York, NY 10022
CALL: 1-800-829-0500
1-212-821-9200
TDD: 212-821-9713
FAX: 1-212-821-9705
E-MAIL: info@lighthouse.org
WEBSITE: www.lighthouse.org
VERIFIED: 11/3/2003
National Association for Parents of Children with Visual Impairments
National. 16 groups. Founded 1980.
Outreach and support for parents of visually impaired children. Promotes formation of local parent support groups. Increases public awareness. Newsletters. Dues $25/family. Group development guidelines.
WRITE:
NAPVI, Inc.
P.O. Box 317
Watertown, MA 02471-0317
CALL: 1-800-562-6265
617-972-7444
FAX: 617-972-7441
E-MAIL: napvi@perkins.pvt.k12.ma.us
WEBSITE: www.spedex.com/napv
VERIFIED: 3/10/2003
National Association for Visually Handicapped
National. 7 groups. Founded 1954.
Support groups for partially-seeing persons. Newsletter, phone support, information and referrals. Guide to starting groups for elders losing sight. Free large print loan library by mail, optical library. Large print informational materials available in Russian and Spanish.
WRITE:
NAVH
Attn. C. Gomez, COO
22 W. 21st St., 6th floor
New York, NY 10010
CALL: 212-889-3141
FAX: 212-727-2931
E-MAIL: staff@navh.org
WEBSITE: www.navh.org
VERIFIED: 3/19/2003
National Federation of the Blind
National. 52 affiliates. Founded 1940.
Serves as both an advocacy and a public information vehicle. Contacts newly blind persons to help with adjustment. Provides information on services and applicable laws. Student scholarships. Assists blind persons who are victims of discrimination. Literature, monthly meetings and magazine. Assistance in starting new groups.
CALL: 410-659-9314
FAX: 410-685-5653
E-MAIL: nfb@nfb.org
WEBSITE: www.nfb.org
VERIFIED: 4/9/2003
National Organization of Parents of Blind Children
National. Founded 1983.
National. Founded 1983. Support for parents of blind children. Serves as both an advocacy and public information vehicle. Provides information on services available. Offers positive philosophy and insights to blindness and practical guidance in raising a blind child. Newsletter, parent seminars, free parents information packet, meetings, conventions. Dues $8.
WRITE:
NOPBC
Attn: Barbara Cheadle, Nat'l Fed. of the Blind
1800 Johnson St.
Baltimore, MD 01230
CALL: 410-659-9314
FAX: 410-685-5653
E-MAIL: bcheadle@nfb.org
WEBSITE: www.nfb.org
VERIFIED: 3/31/2003
Vision Community Services
National. 37 groups. Founded 1970. (Division of Massachusetts Assn. for the Blind)
Support network for persons coping with sight loss. Sponsors support groups for elders and mixed ages. Outreach services, phone support, community volunteers, Braille transcription, recording studio, large print literature and cassettes, newsletter. Assistive devices for a fee.
WRITE:
Vision Comm. Svcs.
23A Elm St.
Watertown, MA 02472
CALL: 617-926-4232
1-800-852-3029 (MA only)
FAX: 617-926-1412
E-MAIL: ir@mablind.org
WEBSITE: www.mablind.org
VERIFIED: 3/18/2003
Vision Northwest
Regional Model. Founded 1983.
Mission is to reach out with compassion, encouragement and understanding to those coping with vision loss, their families and friends. Helps persons with vision loss to become more independent through a network of peer support groups and individual peer counseling. Information and referral, membership newsletter, community newsletter. Talking computer program, Loan-lending optical aids network.
WRITE:
Vision Northwest
9225 SW Hall Blvd., Suite G
Tigard, OR 97223
CALL: 503-684-8389
FAX: 503-684-9359
E-MAIL: kevin@visionnw.com
WEBSITE: www.visionnw.com
VERIFIED: 11/3/2003
Leber's Congenital Amaurosis eGroup
Online.
Listserv for person who are interested sharing support and information relating to the genetic disorder Leber's congenital amaurosis.
WEBSITE: groups.yahoo.com/group/LCA
VERIFIED: 11/3/2003
National Keratoconus Foundation
National network. Founded 1986.
Provides information and support to persons with Keratoconus, an eye condition where the cornea progressively thins causing a cone-like bulge. Newsletter, phone support, information and referrals. Online support group. Encourages research into cause and treatment.
WRITE:
NKCF
8733 Beverly Blvd., Suite 201
Los Angeles, CA 90048
CALL: 1-800-521-2524
FAX: 310-423-0163
E-MAIL: warrenc@cshs.org
WEBSITE: www.nkcf.org
VERIFIED: 11/3/2003
Aniridia Network
Online.
International Network that aims to bring people with aniridia (missing one or both irises) together for support. Provides practical information.
WRITE:
Aniridia Network
P.O. Box 6444
Colchester, CO4, 3XU, UK
WEBSITE: clubs.yahoo.com/clubs/aniridianetwork?s
VERIFIED: 11/3/2003
--------------------------------------------------------------------------------
The above information is based upon information available through the "verified" date at the end of each listing. Since American Self-Help Group Clearinghouse's resources are limited; it is not possible to keep every entry in American Self-Help Group Clearinghouse database completely current and accurate. Please check with the organizations listed for the most current information.
For additional information and assistance about self-help groups, please contact the American Self-Help Group Clearinghouse in Cedar Knolls, New Jersey, by email at: info@selfhelpgroups.org
Copyright © 2004 American Self-Help Clearinghouse. All rights reserved.
|
|